Two months after activation

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Celebrating summer birthdays with friends:  I heard everything without straining.

After spending two months with my cochlear implant, it feels natural to me.  I put it on when I wake up and take it off when I go to sleep and it gives me the confidence to go into places and situations where I know it will be difficult to hear.  Everything went smoothly over the past month if you skip over one or two exceptions which I’ll call adventures.  Here is what happened:

My Further Adventures in Hearing

I arrived at a meeting of the Cochlear Implant Support Group alarmed to discover I was not wearing my device.  The battery had died as I was preparing to leave home but I didn’t have time to change it.  Did the device fall off when I changed my shirt?  But I didn’t change my shirt.  Maybe when I brushed my hair.  Still sitting in my car, I looked in the rear view mirror and couldn’t tell if my hair had been brushed or not.  I sat there debating the relative merits of struggling to hear a lecture on the link between hearing loss and dementia, or retreating home and taking the rest of the night off.

I decided this was a lecture I needed to hear.

In the last months before my implant surgery, when my hearing was so bad and my isolationist impulses at an all-time high, I almost became a person who would rather stay home than fight the losing battle to hear.  Turns out, isolating myself was the closest I came to positioning myself to be a candidate for the link to dementia.  The other links are having a genetic predisposition, and suffering from cognitive overload (what point was I trying to make?).

As it turned out, prior to leaving home, I had removed my device and placed it on my desk in order to change the batteries, when I was distracted.  This happens a lot but I have diagnosed it as a senior moment rather than the dreaded link to dementia…

But that was not my only adventure this month…

I got greedy.

At my last session with my audiologist, instead of being conservative about volume, I kept going.  It didn’t hurt, so why not crank it up and discover my true upper limits?  I instructed my audiologist to keep adding volume until I couldn’t stand it and then went back down one level.  My audiologist evened out the pitches, talking to me all the while so I could test my new “map”.  It seemed fine.

I walked into Medical City’s atrium just as a herd of attack dinosaurs were passing through which turned out to be one crying baby.  This was my first clue I’d demanded more volume than I could handle.  Nevertheless, I pushed on, confident I could make this work, remembering how quickly I’d busted through programs of increasing volume in the beginning, and ignoring my audiologist’s observation that I had probably reached the point where I wouldn’t be adding much more.

Outside the hospital was better although my turn signal sounded like it was coming from a place inside my left eyeball and the road noise sounded like I was driving directly beneath the Death Star.  Later, driving to the lake house with my family, they kept forgetting to WHISPER and someone in the back seat kept CRINKLING a chip bag that made a sound like shredding glass.  Although I thought I had made it clear that my husband’s seatbelt reminder beep was driving stakes through my skull, he let it happen a second time!!  By 5 pm when I was close to strangling everyone within reach I conceded defeat and removed my device.  Once I recovered, I discovered ways to lower volume and increase the sensitivity bubble so that I could wear it again.

My dear audiologist came in early Monday morning for a re-do and I solemnly swear I have learned my lesson.

My Personal Festival of Hearing continues: 

I talked with a person behind a counter.  Small talk.  I continued to talk with her because it was easy.  I could hear her without straining and struggling.  It was something I haven’t experienced from small talk in a long time: pleasure.

Listening to the radio showed me my CI can hear women’s voices better than men.  My experience with hearing aids was always the opposite.

I attended a Med-El workshop and met Scott Hansson and Keri Reynolds.  I learned that there is a good way to train my CI ear and a not-good way to train.  They gave me lots of resources and I’m going to go “workout” as soon as I finish this post.

14 thoughts on “Two months after activation

  1. Gloria Buckley's avatar Gloria Buckley

    I am enjoying reading all your posts and the discoveries you are making! Keep up the good work! From your other Audiologist, Gloria!

  2. Lori's avatar Lori

    I enjoyed reading your path to hearing!! I hope that it rains at the farm so you can hear it trickle down the creek. See you soon.

  3. I just got done reading this and am disappointed there is not more. This is awesome! I have enjoyed reading about your “bad” ear which is now the “good” ear. Your blog made me laugh, made me sad, encouraged me, and inspired me. Please keep writing 🙂

  4. This is just so facinating! I am so happy for you! In a household full of men & dogs…..I wonder if you are ever tempted to turn your volume down at strategic moments?
    What a blessing that this device is available & changing your quality of life for the better!

    • Hi Renee, We are on summer vacation right now and I have had to remove my device several times in the car full of men and dogs. My poor husband does not have the luxury. But what a blessing waking up beside the Yellowstone River and hearing the rush of the water! Thank you for the support!
      Cindy

  5. STUART ALEXANDER's avatar STUART ALEXANDER

    I’ve just read your blog for a second time and I’m very grateful. Your account of how you used to experience deafness is exactly like what I go through now, except I don’t have a good ear! I was first prescribed hearing aids in 1984, but rejected them until 1996, when I had a breakdown and stared at the wall for a year. Since then I’ve worn stronger and stronger pairs but now my hearing is just about gone and they don’t do much for me. A couple of weeks ago I read that cochlear implants are much better now and so I’m going to see the audiologist and ENT consultant on 23 July about getting one. I hope I qualify medically, because fifteen years ago I was told I didn’t, but I hope they have improved since then. What you have gained from one gives me a lot of hope.

    • Dear Stuart, I feel your hearing pain and I hope you got some good news at your appointment on July 23. I understand cochlear implant technology has improved drastically in the last ten years–which is why I was able to qualify. You might want to see a doctor of otology (just the ear) if you don’t get the right answer. Best wishes to you! Cindy

  6. Monika Fines's avatar Monika Fines

    Wow, really enjoyed reading your story. My 9 year old son was just re-implanted and it is always a struggle for a parent to understand what is REALLY happening. Cannot wait to read about the good and not-so-good way to train a new CI ear! Keep writing!

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